Hey all - I've lost at least another 2 pounds. Went in for my Neulasta and was down more. My legs are running a lot. I'm sure that the chemo is doing exactly what we expected and drying the excess water up in my body. I feel wonderful but I'm STARVING all the time. Not sure what that means. My legs are kinda tight and ouchy but they will start healing as soon as the water stops draining out of them.
We are already at Bucktail - I have a demo today at 12 and one at 3 and I'm done for the day. I did so much work this week but I felt so good doing it. Great success.
Again - Happy Memorial Day weekend. Have a great one.
My love to all of you.
Friday, May 25, 2007
Thursday, May 24, 2007
Last AC Chemo achieved
Hi all. I went into the cancer center yesterday and had lost 30 of the 40 actual pounds i gained from the iv fluids. Dr Welt and I agreed we should do my last AC chemo and so i did and I am feeling wonderful. My legs are really weeping today but i can tell that i've lost more of the water weight. My stomach is no longer heavy and my legs are not shiny and dimply. I am NOT getting fluids this time as we think i already have enough :)).
We are heading to Bucktail as soon as my work is done tonite - around 5 - for the long weekend. I can't wait and neither can the boys. Packing is all done. Just gotta finish putting in the car.
Hope you all have a safe and happy Memorial Day - remember the reason for the celebration - and I'll be talking to you next week.
We are heading to Bucktail as soon as my work is done tonite - around 5 - for the long weekend. I can't wait and neither can the boys. Packing is all done. Just gotta finish putting in the car.
Hope you all have a safe and happy Memorial Day - remember the reason for the celebration - and I'll be talking to you next week.
Tuesday, May 22, 2007
From there to here is a long long time....
From my last post - many many things have happened........
I was in Alaska and got my blood checked. I needed to do the shots, which I did, and I had a wonderful time seeing an incredibly beautiful state.
When I got home Saturday the 5th at 10pm I was beat. I slept good that nite but really didn't feel well the next day. Carol brought the boys home to me and I stayed in the house all day. Monday I woke to terrific pain in my abdomin which I was sure was Diverticulitis and a trip to the ER and subsequent admission to Corning Hospital proved to be exactly right. I went into the hospital on Monday at about 4pm and was finally in my room at 1am after having a CT scan of my abdomin. They shot me full of morphine for the pain and off to sleep I went. I don't remember much of the next couple of days - except that they realized I wasn't peeing and during two different "rapid response" treatments from the ICU nursing staff, it was decided that they would "Flood" my kidneys with IV fluids to try to stimulate them to start working -- Which DIDN"T work. My body stored all the fluid (14lts) and I gained 50 lbs overnight in my stomach.
Rob was getting very concerned and after speaking the Deb Danko at the Cancer Center, she and Dr Welt came to see me. It was determined that there was nothing surgically that could be done and so they transported me on Friday via ambulance to Robert Packer in Sayre PA. That is where I spent the next four days - coaxing my kidneys and liver to function more normally. Sunday and Monday I started getting out of bed and walking so that they would let me come home. I was released from the hospital on Tuesday May 15 with 50 extra pounds - no clothing or shoes that fit me.
While driving home from the hospital, there was a strange feeling on my legs and I looked down to see that I had HUGE blisters forming on my legs. Then they popped and water started running out of me. All that water weight was working its way down into my legs and trying to find anyway out that it could - so my legs were leaking - all over the place. I have continued to have this "leaking" right up until now.
Last week was a huge challenge just coming back to normal. I returned to work on Thursday and that was a big struggle. I have been better each day from where I was the day before - and that's all anyone can ask.
Yesterday I had my blood work done for chemo (last AC-bad one) on Wednesday and my counts are good enough to get chemo. I am hoping that the "dehydrating" effect I normally have will work to relieve the rest of the water storage in my body - I think I am down to about 15-18 pounds right now.
I promise to be better about posting. I just got so sick so fast and things went so out of control.
Look for a post chemo post --- My love to all of you.
B
I was in Alaska and got my blood checked. I needed to do the shots, which I did, and I had a wonderful time seeing an incredibly beautiful state.
When I got home Saturday the 5th at 10pm I was beat. I slept good that nite but really didn't feel well the next day. Carol brought the boys home to me and I stayed in the house all day. Monday I woke to terrific pain in my abdomin which I was sure was Diverticulitis and a trip to the ER and subsequent admission to Corning Hospital proved to be exactly right. I went into the hospital on Monday at about 4pm and was finally in my room at 1am after having a CT scan of my abdomin. They shot me full of morphine for the pain and off to sleep I went. I don't remember much of the next couple of days - except that they realized I wasn't peeing and during two different "rapid response" treatments from the ICU nursing staff, it was decided that they would "Flood" my kidneys with IV fluids to try to stimulate them to start working -- Which DIDN"T work. My body stored all the fluid (14lts) and I gained 50 lbs overnight in my stomach.
Rob was getting very concerned and after speaking the Deb Danko at the Cancer Center, she and Dr Welt came to see me. It was determined that there was nothing surgically that could be done and so they transported me on Friday via ambulance to Robert Packer in Sayre PA. That is where I spent the next four days - coaxing my kidneys and liver to function more normally. Sunday and Monday I started getting out of bed and walking so that they would let me come home. I was released from the hospital on Tuesday May 15 with 50 extra pounds - no clothing or shoes that fit me.
While driving home from the hospital, there was a strange feeling on my legs and I looked down to see that I had HUGE blisters forming on my legs. Then they popped and water started running out of me. All that water weight was working its way down into my legs and trying to find anyway out that it could - so my legs were leaking - all over the place. I have continued to have this "leaking" right up until now.
Last week was a huge challenge just coming back to normal. I returned to work on Thursday and that was a big struggle. I have been better each day from where I was the day before - and that's all anyone can ask.
Yesterday I had my blood work done for chemo (last AC-bad one) on Wednesday and my counts are good enough to get chemo. I am hoping that the "dehydrating" effect I normally have will work to relieve the rest of the water storage in my body - I think I am down to about 15-18 pounds right now.
I promise to be better about posting. I just got so sick so fast and things went so out of control.
Look for a post chemo post --- My love to all of you.
B
Thursday, May 3, 2007
Sorry I haven't posted in so long
Treatment #3 was Thursday, April 26. Worked really hard at keeping symptoms at bay. I learned how to give my self an injection and actually gave myself my Neulasta shot. No headache this time and my counts stayed up - Yeah!!! No Neupogin shots this time so far.
Next time is my last Adriamyacin and Cytoxin treatment. The Taxol comes after that. That drug is supposed to be easier to take with less side effects. SO.....I'm ready to get that last bad one over - how crazy does that sound?
Rob turned 30 on the 28th and we had a big party at Bucktail for him. There were so many of our friends there - he was very honored and pleased. We came home on Sunday and went to the Blue & Gold Banguet for Cub Scouts. Sunday and Monday were really tough days for me. I went to the clinic on Monday and Tuesday for fluids. I was better when I went to bed Tuesday night.
Wednesday I spent the day traveling to ALASKA!!! Which is where I am right now. I have to go to a hospital here for some blood work that will be faxed back to The Corning Cancer Center. I traveled with two Neupogin shots in an insulated lunch bag in case I have to give them to myself after the blood work comes back. I'm feeling pretty good so I'm not sure that'll happen but i'm prepared if it does.
Sorry if I worried any of you by not posting (especially my daughter Shelly - Love you honey). It was a crazy busy week and a long trip here. Thanks for the thoughts and prayers.
I love you all.
Next time is my last Adriamyacin and Cytoxin treatment. The Taxol comes after that. That drug is supposed to be easier to take with less side effects. SO.....I'm ready to get that last bad one over - how crazy does that sound?
Rob turned 30 on the 28th and we had a big party at Bucktail for him. There were so many of our friends there - he was very honored and pleased. We came home on Sunday and went to the Blue & Gold Banguet for Cub Scouts. Sunday and Monday were really tough days for me. I went to the clinic on Monday and Tuesday for fluids. I was better when I went to bed Tuesday night.
Wednesday I spent the day traveling to ALASKA!!! Which is where I am right now. I have to go to a hospital here for some blood work that will be faxed back to The Corning Cancer Center. I traveled with two Neupogin shots in an insulated lunch bag in case I have to give them to myself after the blood work comes back. I'm feeling pretty good so I'm not sure that'll happen but i'm prepared if it does.
Sorry if I worried any of you by not posting (especially my daughter Shelly - Love you honey). It was a crazy busy week and a long trip here. Thanks for the thoughts and prayers.
I love you all.
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